Autism

All posts tagged Autism

The Balloon Obsession

Published July 12, 2015 by Amplio Recorrido

balloon obsession

So recently my son who has autism has become obsessed with balloons. Now, I know that toddlers can have favorite toys and they enjoy playing with certain things but, this has gotten out of control. Let me explain. 

We were out shopping as we normally do on July 1st and it’s a day that we all look forward to. Normally, we’ll go into the store and our son enjoys running around, riding in the shopping cart and just enjoys being out. He has never begged for anything or cried for anything with the exception that he does like bouncy balls. We always bought him one because, he would often pop his by throwing it in our rose bushes. On July 1st, we went into the store and balloons that were on the ceiling caught his eye and he started exclaiming “guka, guka” and we didn’t know what that meant. He kept reaching for the balloons so we assume that word means something to him and that was his word for balloon. 

As we continued on through the store we noticed that he was starting to get much more fussy than usual and he started screaming at the top his lungs begging for the balloon. This was not typical of his behavior and he even started kicking me which he never does. Everyone in the store was staring at him and meanwhile we’re baffled as to what just happened. We pulled a balloon down just so we could get through the store. He was smiling, laughing and saying “Guka” over and over and began hugging the balloon. We tried taking it away and getting him to say bye bye to the balloon in the store and things got much worse so we caved and bought the $1 balloon. We didn’t realize that wouldn’t be the end of it. 

We went back to the store a few days later, a different one this time and again he begged for a balloon even though he still had his at home. We managed to get his mind off of it by basically shoving a bag of candy in his eye sight and quickly opening the bag and of course that worked at the time. I know it’s not the best option but, it’s the only one we had. 

Yesterday, my husband took our son into a store and he saw a balloon at the register. My husband was trying to get out of there as quickly as possible before the tantrum started but, the cashier was too slow and there were too many people in front of him. So, the screaming began and of course people were staring. Our son went into a huge meltdown and I’m not talking about like your typical toddler tantrum, he actually went into a full blown violent rage. So again, my husband gave in and my son came home with a bright red, star shaped balloon.

I’m just not sure what to do about this obsession, I know that it’s only been a little over a week but,  I know my son and I’m worried about where this obsession will take him. Will he be completely obsessed with balloons for a long time, what happens when he accidentally lets go of a balloon and it goes higher than we can catch it? We had thought about taking a balloon with us tied around his wrist so that we don’t have to keep buying them. Has anyone else gone through an obsession with balloons or other objects that caused nightmare tantrums?

The Picky Eater

Published July 12, 2015 by Amplio Recorrido
This is not my child but, that's the face he gives me when I put food in front of him that he doesn't like.

This is not my child but, that’s the face he gives me when I put food in front of him that he doesn’t like. PHOTO CREDIT: http://www.shoppinglifestyle.com

So I have a son who’s 2 years old and has autism. He’s never been a great eater but, I have noticed that he’s getting more picky. It seems that he has a problem with foods that are of funny texture. I’ve heard that many Autistic kids go through this and I’m wondering how many other parents out there went through this? 

In the first place, he will not eat any kind of sauces and that includes Mayo, Ketchup, Mustard, Ranch, BBQ or any other sauce. He will not touch multi-colored foods like vegetables (especially not the mixed one’s). He’s highly allergic to fruits so he doesn’t know what they taste like. He will eat anything chicken but, not much else. He’ll eat French Fries and Potatoes (whether whole or chopped) and he’ll eat beef tips but will not eat bread or hamburgers. 

It’s become so bad the doctor has put him on PediaSure because he’s not getting the nutrition he needs from foods even though he’s above average for the guideline for weight. He is not mal-nourished by any means, he’s very healthy it’s just that the doctor is concerned about him losing weight in the future or not getting enough vitamins. We did have him on gummy vitamins but, they apparently were not giving him the right amount of nutrition or at least the doctor could not tell a difference.

If your child is going through this, it’s so important to talk to your pediatrician about it because, they may need testing to see if they have digestive issues or other sensitivities not related to the Autism. For our son, he was born nearly a month early because I had a placental abruption and had to have an emergency c-section and he was born at right at 6 pounds but, could not breathe at birth due to consuming blood and pieces of the placenta. He was in the NICU for 3 days and we stayed in the hospital an additional 2 days.  After we brought him home, he had colic really bad and that actually continued until he was 6 months old and he also had acid reflux so he was on a special formula. It took a long time to get him well and now he’s struggling to eat again. I’m not sure if he’s just not interested in the foods and he is going through both the picky eater stage that happens with 2 year old’s or it’s the Autism. 

If anyone else has gone through this with their Autistic child or your 2 year old please comment on this blog and tell me the story and what if anything helped your child. 

Update: My Autistic Toddler

Published June 15, 2015 by Amplio Recorrido

So my son who’s 2 1/2 years old now is starting to speak somewhat. He can say Taco, Eat, Juice, Mama, Daddy, Bye Bye, Cat and his name. So, we’re encouraging him to keep saying those words and trying not to add too many new words. He babbles so much that we know he knows what he’s talking about, no one else understands him though most of the time, including us.

He’s still in Early Intervention but, they don’t seem to work with him like I thought they would. They aren’t encouraging him to talk or learn new skills. The woman who comes is mostly silent other than trying to get him to learn sign language. I’m concerned about whether or not this is good for him. I don’t mind if he learns sign language, I’m just not thrilled about the little progress being made by these people. They really seem to slack off and the woman seems to not care about her job anymore.

I’ve decided to join many Autistic mom groups, I’m hoping that through there I can receive better support and understand of my son’s condition. We’re still struggling with his OCD’s. He has a fascination with turning lights on and off a certain number of times, watching the same cartoons over and over, right now he’s in the Thomas The Train phase and Bob Zoom (an obnoxious cartoon filled with Spanish kids songs). My son understands much more Spanish than English and so it’s something we’re working on.

I can see that it’s getting harder and more frustrating to get his attention. He’s your typical 2 year old cute ball of terror and with the lack of language skills and showing little interest in other kids or productive activities, I’m at a loss on what to do. I know and understand that kids like same, same, same every single day but, his need for the same thing constantly isn’t working around what we need to get done. He likes going out for no more than 10 minutes which makes it complicated for me to go to the store, to the post office or any other adult thing that must be done. If anyone here can give me some advice I would greatly appreciate it!

The Autistic Toddler Pt2

Published February 18, 2015 by Amplio Recorrido

I’m writing an update about my son who has Autism because, I recently read something that made me feel really bad. My son will be turning 2 years old next week and every since he was born, I have been receiving newsletters from babycenter.com about his development. You know, it’s a newsletter they send via email every month that tells you “Your child is now X months old” and it goes on to tell you what your baby should be doing by that point, milestone wise. I recently received a newsletter that said “Your toddler is now 23 months old” and inside the first sentence was “Your child should now be speaking at least 50 words”. I can tell you that it was a true wake up call and it made me feel really bad. I love my son more than anything in the world and I try to not define him by being Autistic but, it really hit home because, my son speaks 7 words and the rest is babble that cannot be understood. He’s learned 1 new word in 4 months.

I have been attacked by people stating that I’m a horrible parent and that I’m obviously not spending enough time with my son and I’m not reading to him or trying to teach him new words. Are you kidding me? I spend countless hours with him using flashcards, educational shows and even educational puzzles that show the picture and the word, letter and number associated with it. For some reason, it’s not registering and I’m doing the best I can so, I feel really bad when people call me out and say I’m neglecting him. I haven’t found very many resources that could help him or me. I don’t live in a populated city, we have less than 2,000 people here and there are no resources in this area. I do take him to an autism center an hour away and even they come to the house sometimes and work with him but, he still isn’t improving and they said he could stay stuck like this forever.

Does anyone else have autistic kids and what did you do? I would like to hear your stories if you could please comment, I need resources!

End of My Rope

Published February 6, 2015 by Amplio Recorrido

Well, the dreaded mother in law is back. I want to say first off that I did not want her back in our home and I’m really angry that I basically was forced to let her come back here. She came here earlier this week and hasn’t left yet because we haven’t been able to drive her the 2 hours back to her house. Anyway, she was here all of one day before she started in again about we had to take her to kingdom hall and my husband was at work, we only have one car so it wasn’t going to happen so, she says “I’m going to walk” and I laughed because it’s 2 miles from our home, she can barely walk through the house muchless 2 miles away. She tells me that she must walk because she “has to put in hours for Jehovah”. Oh my God, so anyway, she takes off walking and she’s gone 3 minutes and comes back and says “It’s too hot, I can’t do it, so now what am I supposed to do”. I have no idea what she’s supposed to do, I’m without a car when my husband’s at work.

So then Wednesday night comes around and she’s like “I need you to take me to kingdom hall tomorrow night” and my husband says to her “I told you that we’re not involved with those people and we’re not going to drive you to kingdom hall, you need to call over there and have someone from the organization give you a ride” well that just set her off and she wanted to leave, which by the way, she’s always threatening to do. So she ends up calling and talking to I guess an Elder who tells her that they will have someone pick her up and they will call her when they are on their way. Ok, so she doesn’t hear anything by mid day yesterday and so again she starts in about us taking her to kingdom hall, we’re not going to take her and we reminded her of that again. So finally, she gets in touch with someone who comes to pick her up and she leaves. We always know that when she goes to the meetings, she comes back with a vengeance. I have no idea what they are teaching her about “worldly people” but whatever it is, it’s causing her to come back filled with hate. 

So last night I ended up talking to my husband about things going on here and what I needed from him. We ended up raising our voices a little but we were still in the privacy of our bedroom. Well, I hear her slamming doors, boxes and throwing a bunch of stuff in boxes and bags. Her room wall is shared with my son’s room wall and it’s 3:30 in the morning and I’m pissed off because she’s making a bunch of noise pitching a temper tantrum. So I tell my husband, “You need to go in there and tell her to stop her bullshit or she can go walking back home”. He gets up and goes in there and she’s got her head spinning in a 360 degree spin, she’s still slamming boxes and yelling about how much she hates me and she’s leaving and this and that. My husband said “I don’t give a damn what you’re mad about but you’re not going to wake up the baby”. So he walks away and she’s still fuming and she slams one more box and then finally stops.

I told my husband that I’m not going to deal with this and that she shouldn’t have been here to begin with and she needs to return home but, we’re not taking her. I have plans for today and I have plans this weekend and neither includes driving her 2 hours back to her house. I’m actually rather annoyed with this attitude and idea that she’s actually going somewhere when she gets mad. We don’t have money to be making those kind of trips, she doesn’t have a car or anyone who lives anywhere near our house and there’s no bus line. I know that she’ll be on the phone with her other son soon enough expecting him to drive all the way out here and because he’s such a mama’s boy, I’m sure he’ll do it.

Most importantly, I don’t care what she thinks about me at all and I don’t need her help or support. All I’m concerned about is how my son feels. He’s almost 2 years old and she’s just emotionally damaging him by walking in and out of his life. My son already doesn’t have his grandpa in his life because he was nuts and acts crazy and does stupid things just like she does. I don’t need this kind of dysfunction and stress in his life or mine. I could honestly care less that she hates me. As long as he’s not hurt by it then I don’t care. I know that with his Autism and him being a toddler right now, he can’t possibly understand what’s going on so this has to be hard on him. I’m at the end of my rope and I think it’s honestly worse that she’s here than if she’s gone. I just know that I can’t take this anymore.

The Autistic Toddler

Published October 15, 2014 by Amplio Recorrido

When my now 19 month old son was 17 months, I started noticing signs that seemed off about him. I knew the typical toddler behaviors but my son, was different. I had already known the signs of autism from all of my medical research/background. Yes, he was very different. During the day he seems really focused on tapping things a certain number of times, holding his ears at the slightest noise and getting extremely emotional over seemingly nothing. He also had other odd things such as being focused on only saying a few words, doing the same thing every day and cowering at the thought of talking to people he doesn’t know or being around children.

Having an Autistic child is very difficult and having an Autistic Toddler is extremely exhausting. I can easily say that I was not prepared for this but, I’m doing the best I know how. Thank God for support groups. So anyway, my son is so focused on the few things he’s obsessed with that he doesn’t like anything to change or go wrong in his routine and therefore, we basically work around his schedule.

For example: My son likes to play with the pup’s we have, go outside and play with his rocks and grass (When I say his, I mean that he has chosen pebbles that go every where with him), go to the store, play with all of the playground balls that he has and tap on things.

That may seem like a lot but, with him it’s so limited and he’s so focused on everything that he does, he’s not interested in anything else. Sometimes he even wakes up in the middle of the night to perform his “rituals”. It’s very stressful because well, my husband and I don’t get much sleep and it’s hard for us to change his schedule at all. Now, some people have actually said to me “He’s a kid, you’re the boss, just make him do what you want”. It’s not that way with an Autistic Toddler, it simply doesn’t work because, unlike temper tantrums that most toddler’s have, our son actually has full on mental breakdowns that make it impossible for him to function.

He is also extremely attached to three items of his, a stuffed caterpillar, a blanket with whales on it and his pebble rocks. Those items have to go along with us any where we go.

I think that Autism is very much misunderstood by those who don’t know anyone that has it and everything is difficult with an Autistic child. For instance, even simple tasks such as bathing, changing his pull up, changing clothes, putting him to bed, talking loud (even if we’re not speaking to him), public environments, being around other kids etc. it becomes very intense and very stressful to just do simple things that some people take for granted.

To know that our son may never fully develop and that he may need help the rest of his life is almost devastating. Will he be able to have a family? Will he be able to ever have a career or go to college? We don’t know the answer to that yet and we won’t even be able to guess that until he’s much older. For anyone who has an autistic child, I’m sure you can relate to these things. Whether or not you have an autistic child, please comment on this blog and tell me your thoughts.